MEETING THE INFORMATIONAL NEEDS OF PATIENTS WITH ILIZAROV FRAMES

Abstract

Introduction: Ilizarov frames are widely used as an external fixation system. Whether applied for trauma, bone transport or deformity-correction they are usually applied for a minimum of three months and can be used for over a year. The psychological and lifestyle impact of frames has been shown to be significant.

Purpose: We examined the informational needs of patients with Ilizarov frames pre and post-operatively. We then assessed how these needs are met by the provision of a nurse-led support group.

Methods: All patients with Ilizarov frames applied at Hope Hospital, Manchester were contacted by postal questionnaire. Questions were asked about preparation before surgery, changes to lifestyle and information received. Specific questions were asked about attendance at the nurse-led Ilizarov support group.

Results: Thirty-seven patients replied. Twenty-two had frames on and fifteen had recently had them removed. Most patients reported feeling well prepared before surgery regarding the likely impact on their lives. Two-thirds (twenty-five) felt they had received adequate information. Three-quarters (twenty-six) patients had attended the Ilizarov support group and most (twenty-one) had attended the group pre¬operatively. Over three-quarters of patients agreed they would attend the group with a “frame problem” before attending their own GP. All patients found the group supportive and felt comfortable discussing their problems.

Conclusion: The Ilizarov Support Group is a useful resource for people with frames. The group atmosphere is supportive to patients and it is a valuable problem-solving environment. It helps patients prepare for their surgery and reduces attendance to primary care providers for frame related problems. We suggest other Ilizarov units may benefit from the provision of such a service.